A book against Friedrich's ataxia


The philologist Maria Blasco, who suffers from Friedreich’s ataxia, has published a book to raise funds for research into this rare and severe hereditary neurodegenerative disease. Written by 17 patients from eight countries, the proceeds from the sale of the novel are devoted to a gene therapy project led by Ernest Giralt, at IRB , and Javier Diaz Nido, at the Severo Ochoa Molecular Biology Centre in Madrid.

Read the news in Diario de notícias.

 

Related news

28 January 2014
International patient advocates partner to fund Spanish gene-therapy project to treat Friedreich's ataxia

14 November 2013
Patients and scientists join forces to tackle Friedreich’s Ataxia